Author Archives: admin

My Story

Recently I had the pleasure of sitting for an interview with two lovely young women working for a ‘QIO’ (and for the uninitiated like me – that’s a ‘quality improvement organization‘) building a library of ‘patient centered’ stories.

Here’s mine:

My heart is full with appreciation and gratitude for this opportunity to stand for something important! Thank you Melanie, Program Specialist, Learning & Action Network National Coordinating Center Telligen (formerly CFMC) and her colleague Kimothy – two beautiful souls.

I am arguably ‘late’ to this conversation of patient centered care but willingly outspoken none-the-less. Since I’ve been working on finding my voice for some time now (I am in my 80s – ergo the ‘vintage’ moniker) I have made a commitment to show up and participate in conversations that have here-to-for been physically and professionally out of reach.

Starting with an invitation to participate on UCSD Health System’s ‘patient and family centered care council’, followed thereafter by invitation to the IPFCC (the Institute for Patient and Family Centered Care) and most recently the ‘Symposium for Leaders in Healthcare Quality‘ (AHA-SLHQ) conferences, I am finding more and more personal satisfaction to be in the conversation in a meaningful and experiential way. Perhaps the healthcare industry and it’s myriad of health profession’s are finally open to hearing from and engaging with patients beyond the traditional paternalistic ‘I talk, you listen’ top down means of imparting important health information. Maybe, just maybe we’re being invited in as partners in our own healthcare?

If you missed either of the above conferences the twitter transcripts are here and here.

SDCRI | San Diego Cancer Research InstituteFinally, this post would not be whole without a heartfelt shoutout to the volunteers and staff at SDCRI (the San Diego Cancer Research Institute). In particular huge props to the physician leadership of Paul Brenner, MD, PhD and his fellow SDCRI board members and tireless colleagues Daniel Vicario, MD and Mark J. Adler, MD. What a amazing group of committed healers.

But the most meaningful support and inspiration I have received to find and sustain (at least so far) ‘my voice’ is from the courageous stories of hope and help offered by the patients who participate in our circle. Their relentless courage often in the face of very troubling odds and circumstances make me a better and stronger human being. I am deeply blessed by their presence, authenticity and amazing courage and honored to be a part of their/our/my healing as well.

Hugs, Terrie

 

Hello Everyone!

ipfcc brochure

In my capacity as a volunteer member of the Patient Family Care Council (PFCC) at UC San Diego Health System, I am really excited to be attending the Institute of Patient and Family Centered Care (IPFCC) seminar in Burlingame, California this week. The complete conference agenda can be seen here.

I am tweeting from my iPad 1.0 with challenged wifi access via @amterrie, but will do my best to share things that interest me.

You can follow conference tweets via the ‘hashtag’ #IPFCCseminar in the widget to the right.

The program is summarized as follows:

“Partnerships with patients and families are critically important as hospitals, health systems, primary care practices, and community organizations seek to achieve the Triple Aim of improving the patient experience, health of populations, and cost of care. This seminar provides three and a half days of comprehensive, practical sessions to help administrative leaders, board members, physicians, nurses and other staff, patients, and families collaborate effectively to advance the practice of patient- and family-centered care.”

“The seminar builds on the recommendations discussed in the Institute of Medicine’s reports, Crossing the Quality Chasm, To Err is Human, and more recently, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. It offers a timely and valuable learning experience for individuals and teams developing authentic partnerships in medical homes and for those working in Hospital Engagement Networks to meet the goals of the Partnership for Patients initiative to reduce harm and improve transitions of care.”